Im going to smile like nothings wrong, Talk like everythings perfect, Act like its all a dream, And pretend Its not hurting me. Because Im an RSD survivor!
Don't ask for an easier life... ask to be a stronger person!
I'm an easy going type of person. I love to be near water, be it a lake or the beach. That comes in handy since mom owns a marina. I grew up on the beaches of San Diego but Im living in the Northeast Georgia Mountains now. I dont work(retired/disabled) but I help out mom, when ever I can at the marina
I have 2 grown sons Steven 25 and Shane 24 and they have blessed me with 3 fantastic grandchildren. Kage, Alexis and Kaden. (ALL IN ONE YEAR)
Im a proud Army mom. My youngest son Shane is stationed at Camp Carroll,in South Korea .. Im very proud of my son in his choice to serve his country. But I miss him so much it hurts.. And I am reminded every day he is gone..that... "FREEDOM ISNT FREE"
Ladies and bikes kinda run in my family. I just got started... but my mom rode back in the 60's when I was a baby (dad did too) and my mom's mom rode in the 40's she rode an Indian.
I love music, photograghy, and riding my motorcycle, helping others and meeting new people. Im totally hooked on riding now as I get to do all the things I love at the same time. I can't wait for sunny days so I crank up the music and ride.
I have had mostly long term relationships ... but only a few in my life...Im Kinda old fashioned when it comes to men, love & relationships.
Im not a perfect girl. My hair doesnt always stay in place. I spill alot of things and I can be pretty clumsy at times.... But when I think about it and take a step back, I remember how amazing my life truly is and that just maybe....I like being imperfect..I'm just being me.
maybe there is a reason I've been sent down this path..maybe someday Ill figure it out.. but until then I hope that telling my story in some way will help someone else
I have gone from riding in a wheelchair unable too walk without help , to... riding my Honda and keeping up with new friends on my bike and my feet. I know that could change at anytime as RSD is unpredictable.. So Im enjoying myself while I can and I hope to make some new friends along the way to share that time with. Im gonna see where life takes me. Life is what you make of it... I plan on making mine...unforgetable
I have full body RSD, (Reflex Sympathetic Dystrophy). It sucks but it doesnt run my life. RSD is simular to Multiple Sclorosis. Very painfull, but that is just part of my life now. I deal with it and move on.
I have learned so much about life and people from my experiences with RSD...that im not so sure I would want to change anything if given the chance...except maybe the pain part.
..I have had some people ask me about RSD and what it does. Well here is a good example of what RSD is...*the description is...*what Im feeling* Let me share with you and maybe it will help you understand our pain... RSD pain can be anywhere in the body where there are nerves. Most commonly in the four extremities but some people have it in other areas such as eyes, ears, back, face, etc.
What does it feel like?
Well, if you had it in your hand, imagine your hand was doused in gasoline, lit on fire, and then kept that way 24 hours a day, 7 days a week, and you knew it was never going to be put out. Now imagine it both hands, arms, legs, feet; well, you get the picture. I sometimes sit there and am amazed that no one else can see the flames shooting off of my body.
Picture getting pretty vivid?
Imagine going through your daily life where everything that you touch, or that touches you, where most every noise around you from a passing car or plane to children playing, causes you pain. In addition to the enormous pain you are already experiencing from the RSD itself. Imagine living with that pain 24 hours a day, every day, for months, years, and longer.
Reflex sympathetic dystrophy (RSD) is a complex, poorly understood disorder that is characterized by chronic, severe pain and progressive changes in skin, muscle, and bone. Although the precise causes of RSD are unknown, it often occurs following an injury, often minor in nature. Some experts believe that RSD represents an exaggerated response of the sympathetic nervous system to some form of injury or insult (eg. surgery) to the area resulting in chronic, severe, sometimes debilitating pain. Although the signs and symptoms of RSD vary depending upon the clinical stage of the disorder, the one common feature shared by all 3 clinical stages (early, established, or late RSD) is pain.
Because currently there is no cure for RSD, the goals of treatment include: 1) controlling and minimizing pain to the greatest extent possible; 2) restoring function to the RSD-affected limb; 3) preventing progression of the disease process to the late stage; and 4) improving the patient's quality of life and psycholocial functioning.
Alot of people go undiagnosed for years or they are mis-diagnosed completely. In my case it was 3 years before I was properly diagnosed. 16 doctors and 4 different hospitals, just about every test know to man... and God knows how many different pills, trying to find some magic cocktail of meds that helps better my condition and my ability to fight the pain. Im not out of the woods yet because Something as simple is stubbing a toe, a fall, getting a shot or a needed surgery,even catching the flu can put me right back in that wheelchair. So Im living my life, my way...but Im doing it very carefully .. and having a great time meeting all the people on BON.
I hope that helps answer some questions. If you want to know more...Dont be afraid to ask.
-----///\\-----Plz ----///-\\\----Put This ---|||---|||---On Your ---|||---|||---account If ---|||---|||---You Know ----\\\-///----Someone -----\\///-----Who Died ------///\-----Of -----///\\\----Cancer ----///--\\\---Or who may be suffering from it.
Im posting this Cancer ribbon in support of a new friend who lost a daughter... as I lost my father July 5, 2007 to Cancer.
Also my 3 yr. old grandson Kage is a fighter in his own right. He battled Retinoblastoma (cancer of the eye) at the tender age of 18 months and won. He is a survivor and my hero. Kage gives me the courage to push on and fight my own battle with RSD.
I would like to thank each and every one of you who take part in the charity rides and poker runs for St. Jude's Children's Hospital and other organizations helping kids fight cancer. It is greatly appreciated.. you are not forgotten.
Turn offs:
Liars, cheaters, drunks, meth heads, phoney people,predjudice people and those who think they are better than everyone else.
Activities: I like to spend time on my Honda. I love looking for photo ops. Spending time on the marina and helping out my mom when she needs me. meeting new people.
Free Comments and Graphics Free Comments and Graphics
Interests: photograghy, people in general and riding
Favorite Music:
Classic Rock, rock. pop, even some 50's and Yanni, anything but RAP . I can even take some whiney country singing about some schmuck who lost his woman truck and his dog all in the same day... But NO RAP.
Favorite TV Shows: anything medical. "House" is a favorite But I like to see the real stuff too. Medicine never ceases to amaze me.
Favorite Movies: with 3 grandkids?? Uh ...anything Disney. Sorry I never was into the scary stuff
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